Job summary
- Main area
- Paediatrics
- Grade
- Band 6
- Contract
- Permanent
- Hours
- Full time
- Part time
- Compressed hours
- Job ref
- 318-26-T0250
- Employer
- Gloucestershire Hospitals NHS Foundation Trust
- Employer type
- NHS
- Site
- Gloucestershire Royal Hospital
- Town
- Gloucester
- Salary
- £39,959 - £48,117 (pa pro rata if part-time)
- Salary period
- Yearly
- Closing
- 27/04/2026 23:59
Employer heading
Paediatric Epilepsy & Neurodisability Clinical Nurse Specialist Band 6
Band 6
At Gloucestershire Hospitals, our people are at the heart of everything we do. As the county’s largest employer, we are proud to provide high-quality acute, elective, and specialist services to more than 650,000 people across our county. Our care is delivered across Gloucestershire Royal, Cheltenham General and Stroud Maternity Hospital.
With over 9,000 employees representing more than 95 nationalities, bringing together a mix of cultures and experiences to the care that we deliver. Whether you’re beginning your NHS journey or looking to take the next step in your career, this is an exciting time to join us. We’re investing heavily in innovation, research, and transformation, with more than 100 active clinical studies and major developments underway across our hospitals.
We take pride in working as one team, driven by a shared ambition to grow, develop, and continually improve. Every contribution is valued and by combining our collective strengths, we support not only our diverse communities but one another. You can expect a warm, supportive culture and colleagues who are passionate about teamwork, professional development and delivering exceptional care. We offer structured development programmes, mentoring and leadership opportunities to help you progress in your career.
We are committed to fostering an inclusive environment where everyone feels they belong. By joining our Trust, you will benefit from a comprehensive package that includes flexible working opportunities, generous annual leave, the NHS pension scheme, competitive bank rates, local discounts, access to on-site nurseries, reduced public transport costs, reward and recognition schemes and a wide range of health and wellbeing initiatives.
Be part of Gloucestershire Hospitals, explore your future with us today.
Job overview
Take the next step in your nursing career and make a real difference to the lives of children and young people. Join our Paediatric Epilepsy and Neurodisability Service, where your work is meaningful, your input is valued and no two days are the same.
You will provide expert nursing care, clinical leadership and specialist support to children and young people aged 0–18 living with epilepsy and neurodisability. Working both autonomously and as part of a skilled multidisciplinary team, including Neurodisability Consultants and Specialist Nurses, you will support patients to thrive beyond their diagnosis.
A key part of the role is supporting families to manage complex conditions at home wherever possible, tailoring care to individual needs, optimising medication, and prioritising quality of life. We are proud to be a PAFTA Team of the Year Runner Up, reflecting our commitment to excellence, innovation and teamwork.
The role is varied and rewarding, including nurse-led clinics, first seizure safety education, emergency medication training, and support for transition to adult services. You will also work closely with learning disability and adult epilepsy teams to ensure seamless care. This is an opportunity to influence service development, contribute to meaningful projects and help shape pathways of care, all within a supportive team committed to delivering outstanding patient care.
Main duties of the job
The role focuses on five key areas of intervention across the child and young person’s pathway:
Diagnosis – supporting families through the diagnostic process with clear communication, guidance, and appropriate signposting during what can be a complex and emotional time.
Deterioration of condition – acting as a first point of contact for concerns or changes in a child’s condition, ensuring timely assessment, advice, and escalation where required.
Acute admission – maintaining continuity of care during hospital admissions, supporting communication between teams, and contributing to safe and timely discharge planning.
End of life – providing compassionate, coordinated support for children and families, ensuring dignity, comfort, and high-quality holistic end-of-life care.
Transitional care – supporting safe and effective transitions between neonatal, paediatric, tertiary, and adult services.
Across all areas, you will act as an expert resource for families, carers, and professionals, delivering specialist education, contributing to service development, and ensuring evidence-based, high-quality care.
Working for our organisation
Gloucestershire Hospitals provide acute hospital services from two large district general hospitals, Gloucestershire Royal Hospital and Cheltenham General Hospital, as well as maternity services at Stroud Maternity Hospital. With a team of over 9,000 employees, representing over 95 nationalities, we are proud to be the largest employer in Gloucestershire. We take pride in placing people at the centre of everything we do, working together as a united team. Driven by a shared ambition to continually grow, develop, and learn, we recognise and value every contribution.
Our service is a collaborative, multidisciplinary team comprising a Neurodisability Medical Team of eight clinicians (three with a specialist interest in epilepsy) and a dedicated Epilepsy & Neurodisability Nursing Team, including one Band 7 Lead Nurse Specialist and two Band 6 Nurse Specialists.
The service operates across Cheltenham General, Gloucestershire Royal and community hospitals throughout Gloucestershire, delivering a range of specialist clinics including dedicated epilepsy clinics (including first seizure clinics), nurse-led epilepsy clinics, and consultant neurodisability clinics supported by Nurse Specialists.
The team works closely with acute paediatrics, community services, therapy teams, education providers, and tertiary centres to ensure integrated, patient-centred care. We are a small, friendly team working Monday to Friday, with a strong focus on maintaining a healthy work/life balance.
Detailed job description and main responsibilities
Provide expert nursing advice and support for children and young people with epilepsy and/neurodisability.
- Undertake specialist assessments, critically analysing complex information to inform care planning.
- Support the diagnostic process, ensuring families receive clear, compassionate communication and appropriate signposting.
- Act as the first point of contact for families reporting deterioration or concerns.
- Liaise with ward teams and consultants during acute admissions to ensure continuity of care and timely discharge.
- Provide support and guidance in end‑of‑life care, including involvement in Advance Care Planning and ReSPECT processes.
- Facilitate smooth transitions between services in line with Trust policy.
- Ensure clinical practice is evidence‑based and aligned with national and local guidelines.
- Maintain accurate and timely documentation using Trust electronic systems.
- Work collaboratively within the multidisciplinary team, recognising and valuing the roles of all members.
- Maintain professional registration and adhere to the NMC Code at all times.
Person specification
Qualifications and Training
Essential criteria
- RSCN/RN (Child) with NMC registration
- Teaching/assessing qualification.
Desirable criteria
- Non-medical prescribing qualification or willingness to work towards
Knowledge and Skills
Essential criteria
- Able to prioritise own workload and that of others
- Resilient and able to manage complexity
- Excellent communication and interpersonal skills
- Ability to maintain and develop standards of practice
- Strong clinical reasoning and decision‑making skills
- Acts as a role model and leads by example
- Ability to supervise junior and non‑registered staff
- Ability to escalate concerns appropriately
- Ability to challenge practice constructively
- Tenacity and motivation to pursue goals
- Able to work independently and prioritise workload
Desirable criteria
- Awareness of professional issues influencing practice
- Ability to contribute to policy and guideline development
Clinical/Experience
Essential criteria
- Experience working with children and young people with epilepsy and neurodisability
Personal Attributes
Essential criteria
- Enthusiastic and self-aware
- Resilient under pressure
- Team focused
- Reliable, adaptable, and dependable
Desirable criteria
- Creative and Flexible
Applicant requirements
You must have appropriate UK professional registration.
This post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.
Documents to download
Further details / informal visits contact
- Name
- Rebecca Moore
- Job title
- Paediatric Neurodisability and Epilepsy Nurse Lead
- Email address
- [email protected]
- Telephone number
- 0300 422 5792
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